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ALS: Anyone’s
  L
ife Story”
May 2008
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

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Read other stories by clicking the date on the calendar.
J. Steven Ennis
J. Steven Ennis

Name: J. Steven Ennis

Hometown, State: Tullahoma, TN

Age: 65

Family:
Spouse: Sandy
Children: Two, Jordan Ennis and Holly Proctor
Grandchildren: Three and one in the pot; Holland and Sarah Proctor, Steven Ennis

Hobbies/Interests:
Grandchildren.

Date of ALS diagnosis:
May 2005

Tell us about your life before ALS:
Worked 10 hours per day; golf, running three miles, lift weights, work at cabin we have on mountain, scuba diver, loved to hunt and fish.

Tell us about your life with ALS:
Still work about three hours a day, watch TV, read books, play with grandchildren, hug my wonderful wife.

Tell us how ALS has brought new significance to any aspect of your life - family, attitude, hobbies/passions, career, etc. :
Very close family and I enjoy them even more. Enjoy every day I have with family, friends and folks at work. Good attitude. Go as much as I can with walker and wheelchair.

List your favorite quote:
Do unto others as you would have others do unto you.

Do you have a “life motto” or “profound words to live by”:
Working together, playing together, that is what families are for.

Has there been an “a-ha!” moment or a specific turn of events that has helped you live with ALS?
The love and caring of family and friends

Is there anything else about you and/or ALS that you want to share with people who read your story?
Never give up, enjoy every day you have with friends and especially family.

 
 
 
 
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